Chance appears physically 'normal' and is doing all that a newborn does. An MRI done last night shows that he doesn't have Holoprosencephaly after all. He had several major bilateral strokes early in gestation which caused acute constriction resulting in his brain not developing. There is basically just water in his head. He has a brain stem which functions only to the point of 'baby stuff.'
He could live years, functioning as a baby. He's not at high risk for seizures because he doesn't have enough brain cortex. He could potentially pass away from infections as a result of no mobility. His heart is not an issue as was previously thought. The pediatric cardiologist ruled out heart issues prior to delivery.
Praise God for this wonderful report!
Iceland
2 years ago
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